Strongest Families Neurodevelopmental Study

IWK Health Centre, Centre for Research in Family Health


Children with brain-based developmental disorders often face emotional and behavioural difficulties. These challenges can negatively impact their quality of life and the quality of life of their families. Drs. Patrick McGrath (Centre for Research in Family Health) and Lucyna Lach (McGill University) as part of the CHILD-BRIGHT Network are testing an online parenting program designed to improve the lives of children with neurodevelopmental disabilities and their families. Development of the program has involved parents as expert advisors in all phases of the project, ensuring program content addresses the needs of families of children with neurodevelopmental disabilities and challenging behaviours. The Strongest Families Neurodevelopmental Program, “Parents Empowering Neurodiverse Kids”, has been developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group.

Your Impact


Research participants will influence and the development of the Parents Empowering Neurodiverse Kids Program.

Eligibility Criteria


All genders

3 to 14 years old

Autism Spectrum Disorder Cerebral Palsy Epilepsy Global Developmental Delay Down Syndrome, Fetal Alcohol Spectrum Disorder (FASD) severe learning disability OR any other diagnosis that influences how your child gets around, communicates their ideas, processes what they hear, or remembers things

AND the child has been experiencing behavioural problems (disruptive behaviours) that interfere with the activities of daily living for at least 6 months

Have been the primary caregiver for a minimum of 6 months before starting the study

Have a reasonable expectation of being be the primary caregiver for at least 10 months after study starts

Read, write, and understand English

Have access to a telephone

Have regular access to a tablet, smartphone or computer connected to high speed Internet

Live in Canada

Be able to commit to the requirements of taking part in the study (e.g. available to attend weekly coaching calls, having a Facebook account to access Parent-to-Parent support group)

Study Tasks


Questionnaires
Phone call interview
Online parenting program
Group coaching over the phone
Connecting with parents in similar situations

Ethics


This study has been approved by the IWK Research Ethics Board (IWK-REB) Project # 1023970

Keywords


parenting
neurodevelopmental disability
autism
cerebral palsy
down syndrome

Activity and Time


Psychology, Health and Wellness

Interview, Online, Phone Call, Polls and Surveys

Weekdays, Weeknights, Weekends

10 months total, 15 sessions

Compensation


Up to $150 

$50.00 honorariums are paid to participants after completing each set of questionnaires (up to $150.00)

Study Address


This study doesn't require any in-person visits. Complete it in the comfort of your own home!

Posting date: Nov 16, 2020

Earn $150