Strongest Families Neurodevelopmental Study
IWK Health Centre, Centre for Research in Family Health
Children with brain-based developmental disorders often face emotional and behavioural difficulties. These challenges can negatively impact their quality of life and the quality of life of their families. Drs. Patrick McGrath (Centre for Research in Family Health) and Lucyna Lach (McGill University) as part of the CHILD-BRIGHT Network are testing an online parenting program designed to improve the lives of children with neurodevelopmental disabilities and their families. Development of the program has involved parents as expert advisors in all phases of the project, ensuring program content addresses the needs of families of children with neurodevelopmental disabilities and challenging behaviours. The Strongest Families Neurodevelopmental Program, “Parents Empowering Neurodiverse Kids”, has been developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group.
Your Impact
Research participants will influence and the development of the Parents Empowering Neurodiverse Kids Program.
Eligibility Criteria
All genders
3 to 14 years old
Autism Spectrum Disorder Cerebral Palsy Epilepsy Global Developmental Delay Down Syndrome, Fetal Alcohol Spectrum Disorder (FASD) severe learning disability OR any other diagnosis that influences how your child gets around, communicates their ideas, processes what they hear, or remembers things
AND the child has been experiencing behavioural problems (disruptive behaviours) that interfere with the activities of daily living for at least 6 months
Have been the primary caregiver for a minimum of 6 months before starting the study
Have a reasonable expectation of being be the primary caregiver for at least 10 months after study starts
Read, write, and understand English
Have access to a telephone
Have regular access to a tablet, smartphone or computer connected to high speed Internet
Live in Canada
Be able to commit to the requirements of taking part in the study (e.g. available to attend weekly coaching calls, having a Facebook account to access Parent-to-Parent support group)
Study Tasks
Questionnaires
Phone call interview
Online parenting program
Group coaching over the phone
Connecting with parents in similar situations
Ethics
This study has been approved by the IWK Research Ethics Board (IWK-REB) Project # 1023970
Keywords
Activity and Time
Psychology, Health and Wellness
Interview, Online, Phone Call, Polls and Surveys
Weekdays, Weeknights, Weekends
10 months total, 15 sessions
Compensation
Up to $150
$50.00 honorariums are paid to participants after completing each set of questionnaires (up to $150.00)
Study Address
This study doesn't require any in-person visits. Complete it in the comfort of your own home!
Earn $150